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About This Blog

What’s it like to live with a life-limiting condition? What’s it like to face your own mortality?

Lucy Watts MBE invites you to come with her on her journey through life – and end of life. Inspired by the late, great Kate Granger, she wants to give an honest look on life with a life-limiting illness and facing your own mortality, as well as experiencing end of life. So few people share an honest narrative and do not share the difficult side of experiences of illness in a way that is relatable and educational; Lucy wants to give people an experience of travelling this journey with her: through life and – when it comes – end of life. This isn’t a morbid blog. It’s about finding the silver linings, celebrating what is, cherishing those who are dear, finding and sharing the humour and laughing through life, and being brutally honest about life – including the highlights and the s*** bits. It’s life, in all its glory.

It’s a candid blog full of life, laughter, love and loss.  Lucy wants to inspire people to live their life to the fullest, make the most of every day and to focus on all they do have, and motivate them to think about and plan for the only guarantee in life — death (as, in case anyone hasn’t noticed, life has a terminal prognosis) and to ensure their wishes are documented and all necessary paperwork is completed as soon as possible (aka, get your s*** in order!). 

This is not a death blog – it’s a narrative of life, death and everything in between. A story of a life well lived.

About Lucy

Lucy Watts MBE is a prominent patient leader, disability activist, palliative care advocate, consultant, trainer, speaker and entrepreneur. She has a progressive life-limiting condition and extremely complex medical needs and has been living with the knowledge that she will have a short life since her mid teens; she has far exceeded her original prognosis.

Lucy wants to share her journey through life in a more candid and relaxed way. Lucy has truly lived an incredible life, and has far exceeded all expectations – both in terms of survival, and in terms of what she can achieve. However, Lucy’s illness is changing and at some point, she will reach the end of her life. When that’ll be, no one knows. A comment on a group about Lucy being able to voice something so many others cannot, inspired her to start this new blog. She hopes people can learn from, be inspired by and gain through her sharing her experience.

Categories

  • Advance Care Planning
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Archives

  • March 2021
  • February 2021

Recent Posts

Poem: Longing For Life (2021)
Sod’s law and more IV antibiotics – Friday 27th February
12th-19th February – a week of conversations
Difficult Conversation with my Sister
How did we get here? [2020-2021]

Recent Comments

  • Christine Burrows SCP group on Poem: Longing For Life (2021)
  • Ruth on Poem: Longing For Life (2021)
  • ben on Poem: Longing For Life (2021)
  • Katherine Pettus on Poem: Longing For Life (2021)
  • Clare on 12th-19th February – a week of conversations

Blogs by Category

  • Advance Care Planning
  • All Blogs
  • Care Planning
  • Communication & Conversations
  • Death & Dying
  • Decision-Making
  • Digital Legacy
  • End of Life Preparations
  • Family & Friends
  • Grief, Coping & Hope
  • Health & Life Updates
  • Healthcare, Social Care, Medicine & Patient Experience
  • Illness & Disability
  • Legacy
  • Old Blogs
  • Palliative & End of Life Care
  • Poetry
  • Quality of Life
  • Vlogs and Videos
  • Work

Blogs by Order

  • March 2021
  • February 2021

Get in Touch

Email: lucy@lucy-watts.co.uk

 

Copyright © Lucy Watts MBE. All Rights Reserved.
  • HOME
  • About Me
  • Health & Life Updates
  • Blogs by Category
    • All Blogs
    • Family & Friends
    • Legacy
    • Palliative & End of Life Care
    • Advance Care Planning
    • Communication & Conversations
    • Decision-Making
    • Death & Dying
    • Grief, Coping & Hope
    • Living Life To The Fullest
    • Healthcare, Social Care, Medicine & Patient Experience
    • COVID-19
    • Old Blogs
  • Vlogs and Videos
  • Poetry
  • Work Website
  • Contact